Not a huge amount to report - there are no horrific side effects to this drug which is brilliant. Steve feels absolutely fine and the infusion itself only takes an hour, although he has to stay for an hour afterwards each time so they can ensure he doesn't have a reaction to it. That's nothing in comparison to what we're used to, though - with chemotherapy we sometimes spent up to 9 hours in the hospital so it was nice to still have half the day left when it was finished. The worst part for Steve was having the cannula put in - they always struggle to find a vein and had to make three attempts before eventually getting it in and he was not happy!
Esmée came with us - we checked a few weeks ago that this would be okay as I wanted to be with Steve during the treatment, as I have been every time, but do not want to leave her with anyone else yet! They were fine and said it would be in no way harmful to be around other patients and it was lovely having her there. She was a great distraction for us! We could spend hours just staring at her so today that's what we did! She was a big hit with the staff and other patients too and someone even said she'd made their weekend, which was very sweet :)
The next session is in two weeks time and will hopefully be as uneventful as this one. We're really looking forward to it starting to kick in as it's supposed to relieve the pain, fatigue and loss of appetite he's been experiencing. He can't wait to feel a bit more normal again, hopefully in time for Christmas!
I'll keep updating as we go!
Lots of love Xx
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